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Case study · Health Data, Data Linkage,

Our Health, Our Data

Our Health, Our Data is a 9-month project which will culminate in a Roundtable in September 2026. The aim of the project is to engage asylum and refugee communities to explore their perspectives on health data to access care, data linkage, data stewardship, consent and data for health research.

Our Health, Our Data

The challenge

To find out the perspectives of intersectional asylum and refugee communities across the UK. The project was co-designed with the community who fed back the importance of feeding back barriers to accessing health care, particularly primary care.

What we did

Community Researchers with lived experience of asylum lead research conversations in their communities reaching more 80 people across the UK. We ran a further two workshops in Cardiff and London.

The outcome

So far, we have heard that trust is low. Health literacy is poor and digital access is patchy. But people want to be engaged and have their say on all things health data. The full report will be shared in autumn 2026.

In partnership with Understanding Patient Data- NHS Alliance · January 2026